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Louis Conte's avatar

There are so many people I know who are affected by this disorder. It is good see this boy and his family advocating for change!

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VictorDianne Watson's avatar

Way to go, Jon. A relative found that there can be gluten in some medications as well. Let’s be sure we include medications labeling gluten so there are no surprises.

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Truth Seeker's avatar

opinions without knowledge are... opinions without knowledge

we need more labels???? yearh right

How about tatoos of the forehead???

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Ubetcha's avatar

More misdirection. Stop focusing on the symptoms, and focus on the cause. Look at this list.

"Peanut, fish, eggs, milk, and sesame, but not barely, rye, and oats, which can also contain gluten". 50 years ago it was so extremely rare for people to be allergic to food, you never heard about it.

Why are there NO studies comparing the standard US population to the very large control group of Amish and Mennonite communities that do not get vaccinated. All we need to do is look at the current data. The reason is there's no funding. If RFK doesn't fund this, then we know he's compromised.

Yet its never been done. We can do a simple study that compares the rate per thousand of people with allergies, auto-immune deficiencies, seizures, cancer, and asthma.

I work with a fair amount is these communities, my casual observation needs to be proven statistically.

The multi-billion dollar pharmaceutical industry stands in the way of the truth.

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Prometheus Sputnik's avatar

I agree!! Its like we cant trust anyone today. Seems no one in politics works for the people anymore. It is amazing how we are called tin foil hats, yet there is nearly no research, and if there is its probably compromised in their integrity - into these things - you mention vax - i think it is time to be very distrusting in this crap, it seems also the "covid" has been done before and often they push people so far that it becomes obvious, like dthe Leicester vaccine story, same as now people was forced, and in history shot of they didnt obey -- so much for health right?

Also issues we need to look into as it dont seem to me to be only the vax

Also :

Chemicals in our normal daily life, some we cant live without, some we can easy - so it should be testet what these chemicals can do.

Then:

Poison, literally poison like glycphosate(roundup) and many more ( jees why are the bees dying, while we literally spray insectisides in the tons in every country?? Yeah it must be that Peaky climate change again because insects hate warm weather!!

And: environment, social and mentally - how do we live today? What effect has our food made in factories using chemicals and heated with various means?

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Truth Seeker's avatar

Some of us already know, and have for decades. The tenets of health have not changed due to misinformation. The problem is people who do not now comprehend. That has not changed. MAHA is great for the reveals and removal of chemicals.

Then howz about educating about real food and supporing regenerative ag.

We used to call it organic gardening...

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Cindy K.'s avatar

Kennedy is a big supporter of regenerative ag!

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Truth Seeker's avatar

Yes I know! We need to understand this, as individuals not as RFK supporters. Not waiting for anyone to "save" me. Have been living this way for 50 years...

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Truth Seeker's avatar

Your first two sentences were not only over the target.

We do not need "studies" we need common sense

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Jeannine Jacobs's avatar

Good point! Wheat can absorb so much more pesticides than the others, maybe oats, secondarily. Testing Organic wheat (check kind of pesticide) against Commercial or petroleum fertilizer/pesticide grown wheat, might be the first place to start, enabling these people to eat healthy wheat (perhaps).

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Truth Seeker's avatar

sort of, it is not a matter of absorption

Wheat is hybridized to have many times the amount of gluten by design.

The use of glyphosate is the real issue.

Varieties that do not have the excessive gluten exist. Further they are far more resistent to blights etc... Real food not agribiz!!

Outlawing chemicals like Glyphosate, ya think??

Heavy metal bioaccumulation is a real issue, they are taken up by plants...

Arsenic for instance, was commonly used in insecticides.

Organic Certification does not check for heavy metals!!

The certification needs vast improvement.

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Jeannine Jacobs's avatar

OK, but Organic wheat, then, would still have big gluten?

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Truth Seeker's avatar

You are not understanding.

Organic certification has nothing to do with gluten, nothing.

Gluten is not the evil entity, it is the HYBRIDIZATION that selected for strains having many times previous.

Since we are on the topic of Organic, PLEASE UNDERSTAND THAT ORGANIC

can still have excessive amounts of HEAVY METALS.

Clearly the solutions are simple. It does require people comprehend the issues and not expect some certification to protect them!

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Jeannine Jacobs's avatar

Sorry, saw the above mention. I didn't consider heavy metals from wheat! I was just concerned about man made chemicals, especially glysophate (which Organic would avoid). I do enjoy Ancient grains, millet, amaranth and quinoa. The Chinese say millet is good for the spleen/pancreas. The nanoparticles from the sky could be causing more heavy metal accumulation. The petroleum-based fertilizer of commercial crops would cause a big dump of heavy metals.

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Jeannine Jacobs's avatar

I would suggest Dr. McCullough be assigned to this intestinal cure research, a long with an OMD, Oriental Medical Doctor. When in acupuncture college, I did a paper on the tonal aspect of these villi in the intestines. Of course, they relate to the lungs, a Metal/Air element, the chi within these tissues could be related to the Kidney Yang, or adrenal condition if the patient. The kidney, in TCM, has relationships with many organs, heat, lungs and intestines. Absorption of nutrients is vital to health.

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Rebecca Lee (maybeitsmercury)'s avatar

Chelate out mercury and he will very likely get rid of that diagnosis.

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Truth Seeker's avatar

Hg chelation is difficult and must be done with expertise.

One does not get rid of diagnosis. One recovers health.

Hg is one of several heavy metals any of which can degrade health.

Fortunately chelation done correctly can remove all however their is a heirarchy.

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Rebecca Lee (maybeitsmercury)'s avatar

It is just a way of expressing it. I am an expert, by the way. I co-wrote the Mercury Detoxification Manual with Andy Cutler PhD.

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Truth Seeker's avatar

Good! So a couple of useful sentences about how best to chelate Hg?

Just testing your expertise...

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Rebecca Lee (maybeitsmercury)'s avatar

The big issue with moving metals around is their tendency to redistribute to sensitive locations . The Cutler protocol solves this by using real, dithiol mercury chelators dosed on their half life for a minimum of three days and the intervening two nights. The main chelator we use is alpha lipoic acid which is a fat soluble chelator. The other two that we use only chelate extracellular mercury, although DMSA chelates lead.

It is also crucial that there be no current exposure, so we ask anyone who has ever had amalgam fillings to get them removed and get the work double checked by volunteer dentists in our 95,000 member Facebook support group. We also have everyone take 2 antioxidants and 2 minerals which particularly oppose the myriad bad things mercury does to you. Those are magnesium, zinc, C and E. After that people just slog away at slowly removing the stuff using the chelators and dealing with whatever their particular physiology comes up with as far as symptoms as they go along.

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Truth Seeker's avatar

"We" do not need a named protocol. Weak chelators do not "redistribute they do not bind irreversibly and drop offensive elements elsewhere what you refer to as redistribution.

What evidence is there that alpha lipoic acid has affinity for heavy metals? Where is the chemistry? Last I checked heavy metals are positively charged requiring negative charge to irreversibly bind. And that is the goal right? Preventing redistribution... to the extent possible.

I fully understand that heavy metals sequester in fatty tissue which is the body's way of preventing widespread damage.

Liberating them facilitates redistribution. Which is why I question Alpha Lipoic acid used deliberately in that capacity.

Current exposure cannot be completely stopped as the environment is tainted and we happen to live here. Most chelators do not discriminate however have a heirarchy of attraction. If you mean stop eating contaminated fish, or allowing some clueless dentist to place more "silver" then we would agree.

The testing is quizzacle and widely criticised. There are details. Total body burden is incalculable. You forgot to mention excretion pathway, there are two one requiring the liver, the other the kidneys.

Facebook? What a racket. Zuck is a criminal and his empire is on the chopping block. He was installed and did not start the company in his garage.

People that believed you get something for nothing, what were they thinking? Not wise to picnic on Zucks railroad tracks.

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Rebecca Lee (maybeitsmercury)'s avatar

Here: https://www.maybeitsmercury.com/episode-three-of-the-chelation-wars-what-exactly-is-lipoic-acid

This is important stuff. Mercury poisoning is a big issue and has everything to do with all the chronic illness everywhere.

I am not interested in arguing for the sake of arguing.

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First Amendment's avatar

Bravo to the Bari family! Jax is learning a big lesson in how to change the system. Unbelievable that our system is so broken that the FDA would not want labeling. Please post your petition so we can sign it or use it to write our own letters. Many states are proposing bills regarding food purity/transparency bills so the time is ripe. Way to go Jax! btw I got rid of my son's gluten and other food sensitivities with a form of energy medicine called NAET. Truly a miracle.

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Jon Bari's avatar

Here is the Citizen Petition that you can provide comments on to the FDA:

https://www.regulations.gov/document/FDA-2023-P-3942-0001

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Truth Seeker's avatar

Stay in your lane Jennifer, you have no idea about gluten.

The simple truth about gluten is not disclosed in this article.

Wheat producers realized that hybridizing could increase the gluten content and thus

the yield per acre by weight. What do you think they did??

There was no "gluten" gremlin before this. Sensitivity did not exist.

Celiac disease is very very rare and you are playing fast and easy with stats.

The REAL ISSUE, IS ROUNDUP or GLYPHOSATE!!!!!!

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Julie Craker's avatar

Thank you Jon and family!!!!! Our labeling in the USA is shockingly poor, even yard and home maintenance products lack all the ingredients on the label. My husband is from the UK and even a crumb off gluten sets off severe vomiting and a sore gut for several days so it is always a risk when buying food in the US. In the UK, the labeling is absolutely accurate and gluten along with other allergens is always in bold print on the package. Thank you again for being a warrior to get companies to do the RIGHT THING!

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Vinu Arumugham #MAHA's avatar

The FDA causes celiac disease.

Role of animal, food, fungal protein containing vaccines, insulin injections and gastric acid inhibition therapy in the etiology of celiac disease

https://zenodo.org/records/3370428

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Quachin's avatar

There is a book everyone should read:

If its a Hammer, everything is a Nail.

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Susan Sunlightrising's avatar

I've been actively partcipating in my government since the 1980s. My US Rep's office told me I send more emails and phone calls repeatedly than all the other voters. Yet, very little I've requested has been addressed. It hasn't all been because others aren't participating. I started asking for GMO food to be banned, if not properly labeled in the 1980s, and I've asked every year since 1990 when I know more than a million people did the same every year throughout the 1990s. Bill Gates comes in and the people no longer matter. It is time to disassemble the foundations that give this man unfair power and in effect superior status over us, subsidized by the taxpayers.

People get sick from the lies they've been told by public health. Then they go down. They no longer have energy to meet new people because they do not know where all the poisons are at, and they make one mistake--like getting a hepatitis vax on recommendation of public health but not told one adverse side effect, like chronic fatigue syndrome or fibromyalgia will come from that hepatitis vax. They have to wait years later when Judy Mikovits starts talking about it to discover it. Also how did all the heavy metals get into so much of the food including organics? We have organic farms where their property lines are not being protected from non-contained glyphosphate sprayed across the field across the street. We need to return to property rights and the need for others to contain their poisons from the public and from other's property, and this includes the CAFO farms that make their neighbors sick with asthma and respiratory difficulties 10 miles around. I hope pumping up these people isn't the way the egg supply was met for Easter. I did notice Elon cut out the few grants given to small farmers and CSAs but I heard zip about the monocrops and CAFOs that get the big federal dollars. All these poisons in our food supply cause all of us to eat them when we go out to eat or go to potlucks or go to eat at somebody else's house. It's not just us taking responsibility for ourselves, because only about 20-30% of the population are doing that.

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Susan Sunlightrising's avatar

The Amish don't get vaxxed, aren't supposed to use cell phones or phones, but based on their "bent and dent" food stores, they are eating the conventional packaged food in boxes, clear packaging, frozen, whatever that is full of synthetic sugars, added sugars, GMO food, and likely the frozen meat contaminated with GMO food from feed. True they are self-sufficient, but they use a lot of American retail products like sugar to make all their pies, sweet breads, and other sweets they sell to other Americans. They use the toxic brominated flours sometimes too. They seem unaware of the problems with these things. They would still be a control group that has much more exercise, eats better food than most Americans (much of it self-grown and raised), drinks better water (unfluoridated), breathes better air (unless they live across the street from a pesticide crop sprayer or downwind of a CAFO, experiences much less 4G and 5G EMFs but there is a cell tower next to their fields never less than 5 miles away, and often much closer. They also get a lot of that body repair and healing as they tend go to sleep at dark and wake at dawn, so they are sleeping 9pm to 2am when the body's DNA produces repair and healing enzymes. So they are healthier than the most Americans, but they are getting toxins in their bodies, too--just not the vaccines, not the pharmaceuticals.

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Jon Bari's avatar

Here is the Citizen Petition that you can provide comments on to the FDA:

https://www.regulations.gov/document/FDA-2023-P-3942-0001

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Doreene Close's avatar

I’m more concerned about the growing trend of celiac disease and gluten intolerance. At 65 years old I suddenly became intolerant. My 26 year old daughter is suddenly intolerant and my 3 year old grandson also shows intolerance. Let’s make bread healthy again!

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