Now that RFK Junior has worked on sickle cell anemia, which affects only 100,000 people in America, maybe you work on the MTHFR genetic mutation which affects upwards of 175 million people. And it won’t cost a dime.All he has to do is ban man-made Folic Acid from all food products. Man-made folic acid blocks real fully acid from entering this cell receptors, and therefore the dangerous homocysteine,which is harmful to the heart, will be properly disposed of by the body. Otherwise, the homocysteine builds up in the blood and destroys the heart. This is the reason why so many people have high blood pressure. Imagine 100 million people coming off of their high blood pressure meds.
Come on RFK Junior. Do your thing and help America just by lifting a finger and signing a ban order on man-made folic acid.
You got a link to any real evidence on that "man made folic acid" claim? I recognize the superiority of some types of methylated folate, but I don't know of any evidence for anything like what you're claiming. It may exist, I'm not asserting it doesn't, but AFAIK, the problem is not that folic acid is harmful, only that it is less consistently effective. I suspect your proposed ban would do far more harm than good. If you want to take the authoritarian stateist route, it would make more sense to mandate a better form of folate fortification, not just ban what is being used now - which clearly has done a lot of good. The "synthetic bad" idea is true often enough that some people reflexively assume it is always true, but details matter. For example, when people claimed that synthetic vitamin E was just as good, or even more ridiculously, that is was the "same thing" as natural vitamin E, they were lying, but when people claim that "food form" vitamin C or "Ester C" are superior "forms" of vitamin C, or label a supplement "L-glycine" they're lying too. The medical cartel lies a lot more and a lot more egregiously, but people in both camps are guilty.
I mean a link to a paper with experimental evidence that folic acid significantly impairs utilization of methylated forms. Naming a popular book, which may or may not contain such a citation is not the same. I'm moderately familiar, not intensely so, but moderately, with the genetic issues you speak of but AFAIK, they simply impair methylation. They don't block utilization of 5-MTHF, they just impair it's endogenous production. Nor have I seen any evidence that plain folic acid blocks that utilization. I'm not disputing that the methylated forms, especially 5-MTHF, are superior, or that some people get little or no benefit from folic acid. I've preached that sermon for a long time, 20 years maybe. But you're making a specific claim that plain folic acid is not merely useless to some people but actively harmful, which is a substantially different claim for which I've seen no evidence. Not saying it doesn't exist and if it does I'd be interested to see it, but you haven't shown it. I've spent a lot of decades in the supplement industry and while this may be legit, it smells like so many of the questionable claims that have plagued it - exaggeration or over-simplification that got invented by a salesman, or an honest misunderstanding by somebody who was reading something over their head, which then just got repeated until "everybody knows" it even though it's not true. Like the hucksterism about flax oil after Erasmus' book or all the "zone" candy bars that Barry Sears sold. I'd be happy to be shown it's real, but I'm not holding my breath.
It sounds as if you think the number ‘one hundred thousand’ is insignificant. The population who cope with sickle cell have been underserved for decades, primarily due to having a relatively rare disorder, whose exploration to finding treatment won’t satisfy the mercantile interests of the pharmaceutical industry. Next time you see a football stadium filled to capacity ‘ask yourself if this isn’t a significant number’ of people. Because I guarantee you - every last one of those folks feel they have a reason for being here.
Where did I write that 100000 is an insignificant number. Why do you accuse me of doing that??You must be hallucinating, my friend. Please check that your stash of loco weed isn’t spiked with LSD.
This is an amazing development! An opportunity to make lives better by providing an affordable treatment of a painful genetic disease. Thank you, Bobby!
The red blood cells (RBC) sickle when the intracellular level of magnesium falls below a threshold amount. Checking a baseline RBC magnesium level and increasing it via supplementation until reaching the upper limit of reference will prevent the sickling. Since most people with sickle cell are dark skinned and are very likely to be deficient in vitamin D , it is prudent to get a baseline 25-OH vitamin D level and supplement to attain 80 ng/ml (200nm/L). These measures ae safe, effective and would be preferable to genetic manipulation.
I don't know how expensive that test is (real cost I mean, which is terribly obscured by all the intervention in the medical markets so that nobody even knows what something actually costs) but it wouldn't surprise me if it were more cost effective for everybody with sickle cell to just routinely supplement with magnesium glycinate at the upper edge of their individual bowel tolerance. It's not like it's risky or isn't good for a ton of other reasons, like reducing hypertension risk for example.
Linus Pauling hypothecized that sickle cell was an advantageous evolutionary adaptation in tropical climate populations that may have helped ward off diseases.
Yes, people with the milder form are resistant to malaria and possibly other blood diseases. However, receiving 2 copies of the gene that causes it can be fatal
Louis Conte writes a great and informative article here. We all have to start sticking up for the little guy trying magnanimously to do good things in life while fighting against the greedy corrupt corporations who are destroying our standard of living and quality of life.Thank you Louis.
San Rocco Therapeutics (SRT), because of hard work, has risen to the very top to the forthcoming cure for sickle cell disease, thalassemia and other diseases. SRT continues to illustrate its 32 year untiring committent to providing to sick patients, an affordable gene therapy cure. San Rocco Therapeutics' loyalty and dedication to bringing to market this major cure at a price of approximately $800,000 while Big Pharma is demanding approximately $3 million, demonstrates SRT's noble and magnanimous work to help the suffering patients. www.SanRoccoTherapeutics.com
Mr. Kennedy (I hope this will be forwarded to his attention). I have a background in science and medicine (an alternative licensure to MD). I have been part of the detective movement sorting out the players and the script of the mRNA shots. It's clear that the mRNA mechanism, in addition to bypassing the normal immune system and going straight into the bloodstream, and thus virtually guaranteeing autoimmune disease, is dangerous in numerous other ways. Heart and vascular damage, infertility, and death among them. The FDA meeting in October 2020 alerting FDA personnel to the conditions to be monitored after rollout made it clear that the dangers of the COVID mRNA shots were known well before the EUA application. The resulting deaths and injuries argue strongly that deception, fraud, and reckless harms were part of the agenda.
I believe we are at a crossroads with mRNA tech at an even higher level with the self-replicating RNA. Even worse that the spike protein manufacture inside the body for years after administration. I would say we are nearing the banks of the Rubicon. If you do not stand against this technology, I fear that human life on the planet will be endangered, and no less, all the other MAHA efforts will be for naught. Now is the time to stand and protect us from this, shall I say fiendish and dangerous threat. If you don't do it, who will?
Vitamin D has been proven many times over the past decade to significantly reduce Sickle Cell Anemia symptoms. $10/year for vitamin D should reduce the cost of treatment by at least $7,000/year. 350.000 people have visited the page https://vitamindwiki.com/tiki-index.php?page_id=6287
That's precisely why industry has fought the adoption of routine guidelines for D3 to achieve optimal levels. Too many people would be healthy! We can't have that...
There is good reason to suspect that megadoses of B-12 and folate may boost the ratio of fetal/adult hemoglobin, a major strategy in sickle cell treatment. Contrary to medical cartel propaganda, these are extremely safe. I believe there is a fatty acid with similar evidence. But will there be any serious research devoted to proving or disproving the value of these for sickle cell? Not if they can help it, because they couldn't dismiss it as "unproven" - as if ANYTHING is ever absolutely proven. All a reasonable person can ever ask for is the preponderance of evidence.
Well, this is sure better than Harris response to this disease as a California prosecutor. She prosecuted a mother for a truant daughter because girl was in hospital instead of school. Mom lost her job and became homeless. Harris laughed and said when innocence is proven you just drop the charges.
Now that RFK Junior has worked on sickle cell anemia, which affects only 100,000 people in America, maybe you work on the MTHFR genetic mutation which affects upwards of 175 million people. And it won’t cost a dime.All he has to do is ban man-made Folic Acid from all food products. Man-made folic acid blocks real fully acid from entering this cell receptors, and therefore the dangerous homocysteine,which is harmful to the heart, will be properly disposed of by the body. Otherwise, the homocysteine builds up in the blood and destroys the heart. This is the reason why so many people have high blood pressure. Imagine 100 million people coming off of their high blood pressure meds.
Come on RFK Junior. Do your thing and help America just by lifting a finger and signing a ban order on man-made folic acid.
You got a link to any real evidence on that "man made folic acid" claim? I recognize the superiority of some types of methylated folate, but I don't know of any evidence for anything like what you're claiming. It may exist, I'm not asserting it doesn't, but AFAIK, the problem is not that folic acid is harmful, only that it is less consistently effective. I suspect your proposed ban would do far more harm than good. If you want to take the authoritarian stateist route, it would make more sense to mandate a better form of folate fortification, not just ban what is being used now - which clearly has done a lot of good. The "synthetic bad" idea is true often enough that some people reflexively assume it is always true, but details matter. For example, when people claimed that synthetic vitamin E was just as good, or even more ridiculously, that is was the "same thing" as natural vitamin E, they were lying, but when people claim that "food form" vitamin C or "Ester C" are superior "forms" of vitamin C, or label a supplement "L-glycine" they're lying too. The medical cartel lies a lot more and a lot more egregiously, but people in both camps are guilty.
Google “MTHFR genetic mutation.” 40%% of all people on earth have ve this mutation. It is way beyond pandemic proportions.
Read the book “DIRTY GENES” by Dr. Ben Lynch
I mean a link to a paper with experimental evidence that folic acid significantly impairs utilization of methylated forms. Naming a popular book, which may or may not contain such a citation is not the same. I'm moderately familiar, not intensely so, but moderately, with the genetic issues you speak of but AFAIK, they simply impair methylation. They don't block utilization of 5-MTHF, they just impair it's endogenous production. Nor have I seen any evidence that plain folic acid blocks that utilization. I'm not disputing that the methylated forms, especially 5-MTHF, are superior, or that some people get little or no benefit from folic acid. I've preached that sermon for a long time, 20 years maybe. But you're making a specific claim that plain folic acid is not merely useless to some people but actively harmful, which is a substantially different claim for which I've seen no evidence. Not saying it doesn't exist and if it does I'd be interested to see it, but you haven't shown it. I've spent a lot of decades in the supplement industry and while this may be legit, it smells like so many of the questionable claims that have plagued it - exaggeration or over-simplification that got invented by a salesman, or an honest misunderstanding by somebody who was reading something over their head, which then just got repeated until "everybody knows" it even though it's not true. Like the hucksterism about flax oil after Erasmus' book or all the "zone" candy bars that Barry Sears sold. I'd be happy to be shown it's real, but I'm not holding my breath.
MTHFR is in my family. We all have it to vary in different degrees. Or “legs as it’s called. I call it the “motherfucker” mutation.
It sounds as if you think the number ‘one hundred thousand’ is insignificant. The population who cope with sickle cell have been underserved for decades, primarily due to having a relatively rare disorder, whose exploration to finding treatment won’t satisfy the mercantile interests of the pharmaceutical industry. Next time you see a football stadium filled to capacity ‘ask yourself if this isn’t a significant number’ of people. Because I guarantee you - every last one of those folks feel they have a reason for being here.
Where did I write that 100000 is an insignificant number. Why do you accuse me of doing that??You must be hallucinating, my friend. Please check that your stash of loco weed isn’t spiked with LSD.
This is an amazing development! An opportunity to make lives better by providing an affordable treatment of a painful genetic disease. Thank you, Bobby!
The red blood cells (RBC) sickle when the intracellular level of magnesium falls below a threshold amount. Checking a baseline RBC magnesium level and increasing it via supplementation until reaching the upper limit of reference will prevent the sickling. Since most people with sickle cell are dark skinned and are very likely to be deficient in vitamin D , it is prudent to get a baseline 25-OH vitamin D level and supplement to attain 80 ng/ml (200nm/L). These measures ae safe, effective and would be preferable to genetic manipulation.
I don't know how expensive that test is (real cost I mean, which is terribly obscured by all the intervention in the medical markets so that nobody even knows what something actually costs) but it wouldn't surprise me if it were more cost effective for everybody with sickle cell to just routinely supplement with magnesium glycinate at the upper edge of their individual bowel tolerance. It's not like it's risky or isn't good for a ton of other reasons, like reducing hypertension risk for example.
Linus Pauling hypothecized that sickle cell was an advantageous evolutionary adaptation in tropical climate populations that may have helped ward off diseases.
Yes, people with the milder form are resistant to malaria and possibly other blood diseases. However, receiving 2 copies of the gene that causes it can be fatal
Louis Conte writes a great and informative article here. We all have to start sticking up for the little guy trying magnanimously to do good things in life while fighting against the greedy corrupt corporations who are destroying our standard of living and quality of life.Thank you Louis.
There are only a few real good journalists remaining on earth getting us true knowledge and information. Another one is TrialSite News — https://www.trialsitenews.com/a/gene-therapy-pipeline-for-scd-and-thalassemiacost-and-access-become-key-under-kennedy-hhs-8e8b85d1?fbclid=IwQ0xDSwLRUSxleHRuA2FlbQIxMQABHheUAQx26zZX8-FmIqEC3E8PNbb79pAFFT8dqY5hkafhki-PYuwGC90Mk-tr_aem_66JbS6v6bniiGCRmFEUy5w
San Rocco Therapeutics (SRT), because of hard work, has risen to the very top to the forthcoming cure for sickle cell disease, thalassemia and other diseases. SRT continues to illustrate its 32 year untiring committent to providing to sick patients, an affordable gene therapy cure. San Rocco Therapeutics' loyalty and dedication to bringing to market this major cure at a price of approximately $800,000 while Big Pharma is demanding approximately $3 million, demonstrates SRT's noble and magnanimous work to help the suffering patients. www.SanRoccoTherapeutics.com
Mr. Kennedy (I hope this will be forwarded to his attention). I have a background in science and medicine (an alternative licensure to MD). I have been part of the detective movement sorting out the players and the script of the mRNA shots. It's clear that the mRNA mechanism, in addition to bypassing the normal immune system and going straight into the bloodstream, and thus virtually guaranteeing autoimmune disease, is dangerous in numerous other ways. Heart and vascular damage, infertility, and death among them. The FDA meeting in October 2020 alerting FDA personnel to the conditions to be monitored after rollout made it clear that the dangers of the COVID mRNA shots were known well before the EUA application. The resulting deaths and injuries argue strongly that deception, fraud, and reckless harms were part of the agenda.
I believe we are at a crossroads with mRNA tech at an even higher level with the self-replicating RNA. Even worse that the spike protein manufacture inside the body for years after administration. I would say we are nearing the banks of the Rubicon. If you do not stand against this technology, I fear that human life on the planet will be endangered, and no less, all the other MAHA efforts will be for naught. Now is the time to stand and protect us from this, shall I say fiendish and dangerous threat. If you don't do it, who will?
Vitamin D has been proven many times over the past decade to significantly reduce Sickle Cell Anemia symptoms. $10/year for vitamin D should reduce the cost of treatment by at least $7,000/year. 350.000 people have visited the page https://vitamindwiki.com/tiki-index.php?page_id=6287
That's precisely why industry has fought the adoption of routine guidelines for D3 to achieve optimal levels. Too many people would be healthy! We can't have that...
Pain killer addiction is another side effect that wasn't mentioned that goes along with the current treatment as well.
Great, And President Trump Executive Ordered for the US to have the Lowest Price for all prescription Drugs.
There is good reason to suspect that megadoses of B-12 and folate may boost the ratio of fetal/adult hemoglobin, a major strategy in sickle cell treatment. Contrary to medical cartel propaganda, these are extremely safe. I believe there is a fatty acid with similar evidence. But will there be any serious research devoted to proving or disproving the value of these for sickle cell? Not if they can help it, because they couldn't dismiss it as "unproven" - as if ANYTHING is ever absolutely proven. All a reasonable person can ever ask for is the preponderance of evidence.
Well, this is sure better than Harris response to this disease as a California prosecutor. She prosecuted a mother for a truant daughter because girl was in hospital instead of school. Mom lost her job and became homeless. Harris laughed and said when innocence is proven you just drop the charges.
Gene therapy? - BS . That’s the covid death shot.